Remote monitoring is becoming a standard in cancer patients after the positivity of 7 randomized trials showing improvement of quality of life, symptom burden reduction, and survival.It can be used for toxicity of treatments management, for relapse or complications detection and for supportive and palliative care delivery. Criteria of choice of the instrument are in discussion and will be published by the European Society of Medical Oncology in a few months. It will provide criteria of security, efficacy and practical information for medical team to improve the spread of validated solutions.

In countries like India, South Africa, and Ghana, diabetes has emerged as a major driver of both health outcomes and long-term costs. Yet their health systems are not yet well-equipped to meet the needs of people living with diabetes. As these countries chart a path toward Universal Health Coverage, they will need to expand programs to prevent and manage diabetes. This session engages innovators at the forefront of the movement. We will hear from the perspectives of a patient, provider, and payer on the challenges and opportunities they face in their work.

The session will provide an update on the Health Outcomes Observatory (H2O) project which is funded by the Innovative Medicines Initiative and started a year ago. H2O is a private-public partnership that sets up a multi-jurisdictional ecosystem to incorporate patient-reported and other health outcomes into health care decision-making in four European countries. It initially focuses on diabetes, cancer, and inflammatory bowel disease, evaluating and selecting meaningful outcome standards in a way that ensures broad acceptability among all stakeholders. H2O provides digital tools for patients and a dashboard for providers. It develops a governance system that gives patients control over their data and allows for ethical data sharing. In our talk, we will also present ways to get involved in this initiative.
Reference: https://catalyst.nejm.org/doi/full/10.1056/CAT.21.0146

• How and why to communicate the value of reporting and measuring outcomes to patients
• Helping and supporting patient organisations to understand more outcomes-based research
• Adopting patient meaningful involvement (e.g. patient-relevant outcomes measurement, evidence generalisation, medical research)
• Looking at how digitalisation affected shared-decision-making
• Ensuring patient access to healthcare and equity
• How digitalisation affected shared-decision-making
• The importance and value of responsible health data access

Watch the video of our President and CEO, Suzanne Gaunt and Prof. Dr. Fred van Eenennaam - Chairman, Value-Based Health Care Center Europe, Netherlands

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• Change management at all organisational levels
• How to secure support from institutional leadership
• Ensuring all stakeholders are aligned and motivated
• Securing on-going financial and technical support
• Transformation in Health-Information Technology
• Transformation in workflow and care
• Outcomes measurement as a catalyst for interdisciplinary collaboration
• Putting outcomes measurement to work for patients
• Collaborative networks and benchmarking

CLP Whitepaper

The session will provide an insight into the ICHOM Benchmarking platform and will discuss the platform’s objectives and functioning, explain the value it brings to care providers and patients’ outcome improvement as well as address possible concerns.

Total number of attendees – 40

Please join Elizabeth Teisberg, Alice Andrews and Scott Wallace of the Value Institute for Health and Care (University of Texas at Austin), and Dr. Paul M. Wallang, MD, of St. Andrew’s Healthcare for a highly-interactive discussion of the care transformation underway at St. Andrew’s Healthcare in England. Driven to achieve the health outcomes that mattered most to their patients, an ambitious team of clinicians at St. Andrew’s fundamentally restructured care delivery and is driving ongoing improvement through insights from carefully measuring outcomes. This session will be limited to 40 participants, advance registration is required, and participants should expect to spend approximately one hour reading the case before the session.

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Total number of attendees – 40

This free of charge Think Tank session is oriented around bringing together and building a community of practice for person-centered and value-promoting outcomes measurement in Low- and Middle-Income Countries.

Registration is now closed.

Total number of attendees – Unlimited

The workshop will start with a plenary session where ICHOM CEO and Directors will provide an overview on the 2021 initiatives, including machine-readable sets, standard sets that are being developed, the framework for harmonising standard sets and an overview of the ICHOM new data dictionaries - SNOMED, LOINC, ICD10. Then delegates will be invited to select one of the below breakout rooms for the continued conversation and questions to ICHOM.

• Key steps for successful standard set implementation and support
• Benchmarking and Machine-readable sets
• ICHOM standard sets (development, use, future pipeline, harmonisation project)