TRANSFORMING HEALTHCARE GLOBALLY
THE ICHOM GLOBAL VIRTUAL CONGRESS 2021

Remote monitoring is becoming a standard in cancer patients after the positivity of 7 randomized trials showing improvement of quality of life, symptom burden reduction, and survival.It can be used for toxicity of treatments management, for relapse or complications detection and for supportive and palliative care delivery. Criteria of choice of the instrument are in discussion and will be published by the European Society of Medical Oncology in a few months. It will provide criteria of security, efficacy and practical information for medical team to improve the spread of validated solutions.

The session will provide an update on the Health Outcomes Observatory (H2O) project which is funded by the Innovative Medicines Initiative and started a year ago. H2O is a private-public partnership that sets up a multi-jurisdictional ecosystem to incorporate patient-reported and other health outcomes into health care decision-making in four European countries. It initially focuses on diabetes, cancer, and inflammatory bowel disease, evaluating and selecting meaningful outcome standards in a way that ensures broad acceptability among all stakeholders. H2O provides digital tools for patients and a dashboard for providers. It develops a governance system that gives patients control over their data and allows for ethical data sharing. In our talk, we will also present ways to get involved in this initiative.
Reference: https://catalyst.nejm.org/doi/full/10.1056/CAT.21.0146

• How and why to communicate the value of reporting and measuring outcomes to patients
• Helping and supporting patient organisations to understand more outcomes-based research
• Adopting patient meaningful involvement (e.g. patient-relevant outcomes measurement, evidence generalisation, medical research)
• Looking at how digitalisation affected shared-decision-making
• Ensuring patient access to healthcare and equity
• How digitalisation affected shared-decision-making
• The importance and value of responsible health data access

• Change management at all organisational levels
• How to secure support from institutional leadership
• Ensuring all stakeholders are aligned and motivated
• Securing on-going financial and technical support
• Transformation in Health-Information Technology
• Transformation in workflow and care
• Outcomes measurement as a catalyst for interdisciplinary collaboration
• Putting outcomes measurement to work for patients
• Collaborative networks and benchmarking

CLP Paper

The session will provide an insight into the ICHOM Benchmarking platform and will discuss the platform’s objectives and functioning, explain the value it brings to care providers and patients’ outcome improvement as well as address possible concerns.

Total number of attendees – 40

Please join Elizabeth Teisberg, Alice Andrews and Scott Wallace of the Value Institute for Health
and Care (University of Texas at Austin), and Dr. Paul M. Wallang, MD, of St. Andrew’s
Healthcare for a highly-interactive discussion of the care transformation underway at St.
Andrew’s Healthcare in England. Driven to achieve the health outcomes that mattered most to
their patients, an ambitious team of clinicians at St. Andrew’s fundamentally restructured care
delivery and is driving ongoing improvement through insights from carefully measuring
outcomes. This session will be limited to 40 participants, advance registration is required, and
participants should expect to spend approximately one hour reading the case before the
session.

Total number of attendees – 60

This free of charge Think Tank session will serve as a networking platform for healthcare professionals who are actively involved or looking to get involved in projects that bring value to patients in Lower- and Middle-Income Countries.

Delegates interested in attending this session will be required to submit a separate registration - subject to approval by ICHOM.

Total number of attendees – Unlimited

The workshop will start with a plenary session where ICHOM CEO and Directors will provide an overview on the 2021 initiatives, including machine-readable sets, standard sets that are being developed, the framework for harmonising standard sets and an overview of the ICHOM new data dictionaries - SNOMED, LOINC, ICD10. Then delegates will be invited to select one of the below breakout rooms for the continued conversation and questions to ICHOM.

• Key steps for successful standard set implementation and support
• Benchmarking and Machine-readable sets
• ICHOM standard sets (development, use, future pipeline, harmonisation project)